Tuesday, August 12, 2008


That is how we are feeling today. Well, we are feeling ONE step closer to FREE, anyway. 

Sirri's chest tubes both came out today! Yipeeeeeeee! Getting her out of bed and moving around is so much easier and we don't have to worry about them getting tugged on and pulled at causing her pain. It was a traumatic experience, mostly cause there was a lot of tape to be removed and the way they remove the tubes is with a 1...2...3... YANK! ouch. The holes left behind are a bit bigger around than a pencil eraser and look so sore. I winced just looking at them. I was also able to see her incision where they removed the tumor and it is bigger than I thought it would be. It's about 4 inches long.  Yowza! 

After Sirri had her chest tubes removed we decided to celebrate by going downstairs to the cafeteria for lunch and ice cream. I wasn't sure if Sirri would even want to go, she hasn't wanted to yet (even for ice cream. Can you believe it?!?!?!?) So, I was excited when she was happy to go. She walked out into the hall and then rode the rest of the way in the wagon. She chose a big pretzel with cheese and only ate a bite, maybe two. She did the same thing with her ice cream. It was still so nice to get out of her room for a bit. It was especially fun because Gma and Gpa Jensen got to come with us (and even treated us to lunch!) The whole experience realy wore Sirri right out and she took a long three hour nap. Mommy took a nap too. (Until some doctors came in the room and woke her up. Surprise! ya right!) 
Sirri had to have her IV replaced today as well which was also traumatic. Let's just hope that this one will last until we have to go home. 

And let's hope we get to go home soon!


NT Weekes Family said...

YEAH!!!! ;o) Progress!!!!
I'm sure the place (cut) where they removed the tumor will go down & be smaller as time goes by.
What a strong little GirL... like mommy like daughter! :o)
Thinking "happy" thoughts about you & your family Lisa.
LoVa ya!

Jenibelle said...

The "upside"...Sirri will never want to wear a bikini because of her scar. See? There's ALWAYS a positive!

I am so happy that she is on the mend. We are definitely, for sure, coming in October!!! Yippeeeeee!! Counting the weeks till we get to see you and give Sirri a hug ourselves!!


hip hip hooray!!! if i was there i would sing, "SUPER TROOPER" for sirri...even though she would roll her eyes at me and say, "aunt cindy, don't sing that song." i'd still sing it cuz that's what she and YOU, lisa-marie are...SUPER TROOPERS!!!!

love you and wish i were there to celebrate!

kiss my little squish for me!

Carolyn Wing said...

I am adding Sirri to my way too long prayer list of neuroblastoma children. Hugs and prayers. Carolyn Wing grandma to Laura Stage IV neuroblastoma carepages.com page name LauraVDB

Lauren in GA said...

Ohhhhh, I hope you willl be free soon, too!!!

It does seeem sad that they have to Yank the tubes out...I wish there was some other way.

Robin said...

man, lisa. . . you're going thru some tough stuff. i wish i could visit so bad!!! i'm glad everything is looking up!

i wish i could have seen michelle too. what a great gal.

way to go sirr!

Rochelleht said...

I am so glad this is going so well and things are moving forward. What a relief that they got it all and that you can actually think of going home soon. YEAH!

sarahbelleisk said...

YAY! Glad to hear things are going better. We have been praying for you! :)

Bridget said...

YEAH!! I am so happy things are improving. You must just be so, so relieved to see her getting better.

andrea said...

this is great news. before you know it, she'll be back to her old self and this will be a memory. i'm still in awe of how you have handled it all.

Harestads said...

Lisa - I have been away from the blog world for a while, so I am just now reading up on your sweet family and yes, I am crying my eyes out for Sirri and your family. It just so happens that we were at Primary's with our daughter Elsie exactly one year ago for about a week when she was diagnosed with Kawasaki's disease. She was not quite two at the time. As I was reading about Sirri screaming and being upset any time someone came in the room to "mess" with her I couldn't help remembering Elsie doing the same thing. It breaks my heart that such little spirits have to go through so much. How are you holding up? Those hard, cold hospital floors are brutal. And I know you don't get any sleep there. I am just in Syracuse and an all too familiar with the drive to Primary's. If you need ANYTHING at all - would you please, please let me know. I know you have a great support system - but everyone needs a break sometimes. We love you and are praying for you - Emily

Harestads said...

Sorry - I forgot to leave my contact -
my e-mail is emilyharestad@gmail.com

If you e-mail me, I'll get you my phone numbers. I mean it - I would be honored to help in any way that I can. Take care!